The incredible story of Irish filmmaker Simon Fitzmaurice, who has been living with Motor Neuron Disease since 2008, is captured in the documentary It's Not Yet Dark which hits cinemas this Friday.
The documentary was made at a remarkable time in Simon's life, when he was directing his first feature film My Name Is Emily, all while confined to a wheelchair and only communicating through a computer he controlled with his eyes.
The documentary is narrated by Colin Farrell, reading moving excerpts from Simon's autobiography, and was directed by Irish filmmaker Frankie Fenton.
The documentary looks at how Simon's life was shaken by his MND diagnosis, just as his career was taking off. But then we see how he didn't let it hold him back, pursuing projects that mattered to him and embracing family life. The documentary includes interviews with his wife Ruth and behind the scenes footage from the filming of My Name Is Emily. Ruth will be familiar from her bestselling memoir I Found My Tribe following her discovery of her love of sea swimming in the aftermath of Simon's diagnosis. What is most moving is how this couple do not allow themselves to wallow and tackle all MND throws at them with defiance.
See It's Not Yet Dark at the following cinemas from October 13: Dublin's IMC Dun Laoghaire, [email protected], Light House Cinema and Omniplex Rathmines; Cork's Omniplex and Triskel Arts Centre; and The Eye Cinema in Galway.
For more on the film, visit www.itsnotyetdark.com.
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